Thank You I just want to start by saying how incredibly blessed we are to have such an amazing support system taking care of Freddie and our family. Anyone who has donated, cooked us food, entertained Evie while we were admitted, put together care packages, checked in on us, or even just followed along with…

We were discharged home on Saturday, 7/26, after Freddie completed cycle 2 of induction chemoimmunotherapy, but the following Sunday and Monday were pretty rough for the little guy. The majority of his symptoms were attributed to the immunotherapy he received the week prior, including nausea, vomiting, rash, and a generally cranky attitude. However, Tuesday morning,…

Freddie has officially completed cycle 2 of induction chemoimmunotherapy! He received chemo alone on day 1 of the cycle, followed by chemo and immunotherapy on days 2-5. In the grand scheme of things, he tolerated it well! As we were forewarned, it was tricky trying to find the rate/dose of morphine that controlled the infusion-related…

Freddie was admitted for cycle two of chemotherapy yesterday after a nice, uneventful week at home. We saw our primary oncologist in clinic this past Thursday, where we learned that Freddie had been assigned to arm B (non-control arm) of the clinical trial we enrolled in last month. The standard of care in treating newly-diagnosed…

After 6 nights in the hospital, we were finally cleared to come home! Since Freddie developed a neutropenic fever on Sunday, 7/6, we had to remain inpatient until 1) no infectious source was found OR he completed the treatment course for whatever source was identified, 2) he improved clinically, and 3) his counts [namely neutrophil]…

6.19.25I should have known the news wasn’t good when the ER resident entered our bay and took a knee. I had just finished changing Fred’s diaper and nervously began making small talk about how he had a blowout in his car seat on the way here. We had come to Oishei Children’s Hospital a few…