Getting to spend most of November at home was such a blessing! Our original transplant admission date was November 3rd, and we’re so thankful to our team for pushing that date back a few weeks and giving us some much-needed time at home. Freddie was admitted on November 24th for the next phase of treatment.…

Freddie ended up spending 3 weeks in the hospital during cycle 5, given his slow count recovery. No infectious source was identified to account for the fever on day 6 so once his counts began to improve, we were able to go home! During our extended stay, Freddie had restaging CT scans of his head,…

It’s with tear-filled eyes and a full heart that we say thank you to everyone who had a hand in making Freddie’s 5K the success that it was! Alex and Claire reached out a few weeks after Freddie was diagnosed with the idea for the event, wheels already fully in motion. I’m not typically one…

Freddie was admitted on October 2 for his final cycle of chemoimmunotherapy! He was due to start the cycle on September 29, but his counts (platelet and neutrophil) hadn’t recovered in time. We delayed the start by a few days, which allowed Fred some extra time at home to gain more weight and sleep in…

After seven nights in the hospital, we’re home! Freddie’s blood cultures were [again] positive for Staphylococcus aureus and his respiratory panel was positive for rhinovirus. He was positive for both of these bugs back in August when we were admitted after cycle 2. Since this is the second time he has been positive for S.…

Shortly after the last post, Freddie did spike a fever overnight and we headed back to the ER at Children’s. Thankfully blood cultures were negative, but he was still testing positive for rhinovirus. This virus is apparently pretty notorious for ramping back up when counts drop, so when Freddie got neutropenic, the virus resurged and…

Thank You I just want to start by saying how incredibly blessed we are to have such an amazing support system taking care of Freddie and our family. Anyone who has donated, cooked us food, entertained Evie while we were admitted, put together care packages, checked in on us, or even just followed along with…

We were discharged home on Saturday, 7/26, after Freddie completed cycle 2 of induction chemoimmunotherapy, but the following Sunday and Monday were pretty rough for the little guy. The majority of his symptoms were attributed to the immunotherapy he received the week prior, including nausea, vomiting, rash, and a generally cranky attitude. However, Tuesday morning,…

Freddie has officially completed cycle 2 of induction chemoimmunotherapy! He received chemo alone on day 1 of the cycle, followed by chemo and immunotherapy on days 2-5. In the grand scheme of things, he tolerated it well! As we were forewarned, it was tricky trying to find the rate/dose of morphine that controlled the infusion-related…

Freddie was admitted for cycle two of chemotherapy yesterday after a nice, uneventful week at home. We saw our primary oncologist in clinic this past Thursday, where we learned that Freddie had been assigned to arm B (non-control arm) of the clinical trial we enrolled in last month. The standard of care in treating newly-diagnosed…