Freddie's Fight Against Neuroblastoma
Follow along with Freddie as he battles stage 4 high risk neuroblastoma.
Category: Uncategorized
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Freddie has officially completed cycle 2 of induction chemoimmunotherapy! He received chemo alone on day 1 of the cycle, followed by chemo and immunotherapy on days 2-5. In the grand scheme of things, he tolerated it well! As we were forewarned, it was tricky trying to find the rate/dose of morphine that controlled the infusion-related…
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Freddie was admitted for cycle two of chemotherapy yesterday after a nice, uneventful week at home. We saw our primary oncologist in clinic this past Thursday, where we learned that Freddie had been assigned to arm B (non-control arm) of the clinical trial we enrolled in last month. The standard of care in treating newly-diagnosed…
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After 6 nights in the hospital, we were finally cleared to come home! Since Freddie developed a neutropenic fever on Sunday, 7/6, we had to remain inpatient until 1) no infectious source was found OR he completed the treatment course for whatever source was identified, 2) he improved clinically, and 3) his counts [namely neutrophil]…
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6.19.25I should have known the news wasn’t good when the ER resident entered our bay and took a knee. I had just finished changing Fred’s diaper and nervously began making small talk about how he had a blowout in his car seat on the way here. We had come to Oishei Children’s Hospital a few…